Congratulations to Marissa Bird for winning the 2019 McMaster Child Health Conference Poster Competition! Please find below the winning abstract and poster!
The Abstract
Title: Care of Children and Families with Special Healthcare Needs via Synchronous Digital Health Technologies: A Scoping Review
Authors: Marissa Bird, Lin Li, Carley Ouellette, Kylie Hopkins, & Nancy Carter
Background: The use of synchronous digital health (DH) to deliver care to children with special healthcare needs (CSHCN) and their families at home has shown promise for improving clinical, quality of life, and economic outcomes. However, a comprehensive description of the various models of synchronous home DH interventions does not exist, nor has the impact of such interventions been summarized to date.
Aim: The aims of this study were to describe the ways in which synchronous home DH has been used to care for CSHCN, and to summarize the outcomes, impact of family involvement, and implementation issues that have been reported using synchronous home DH technologies.
Methods: A comprehensive scoping review of the literature was conducted, guided by Arksey and O'Malley's Scoping Review Framework. Studies focused on the provision of ongoing care via synchronous DH technology to CSHCN and their families in a home setting.
Results: 38 articles were included in the review. Included studies generally reported interventions to be feasible and acceptable. Favourable outcomes were observed in both intervention studies aimed at replacing in-person visits with DH visits (n=10), and those aimed at training parents to deliver interventions via DH (n=7). End-users such as patients, families, and healthcare providers have not been routinely included in the design and implementation of synchronous DH interventions.
Conclusion: Few studies have systematically evaluated the use of synchronous DH interventions with CSHCN. A gap exists with regard to the inclusion of patients, families, and healthcare providers in the design and implementation of synchronous DH interventions.
Authors: Marissa Bird, Lin Li, Carley Ouellette, Kylie Hopkins, & Nancy Carter
Background: The use of synchronous digital health (DH) to deliver care to children with special healthcare needs (CSHCN) and their families at home has shown promise for improving clinical, quality of life, and economic outcomes. However, a comprehensive description of the various models of synchronous home DH interventions does not exist, nor has the impact of such interventions been summarized to date.
Aim: The aims of this study were to describe the ways in which synchronous home DH has been used to care for CSHCN, and to summarize the outcomes, impact of family involvement, and implementation issues that have been reported using synchronous home DH technologies.
Methods: A comprehensive scoping review of the literature was conducted, guided by Arksey and O'Malley's Scoping Review Framework. Studies focused on the provision of ongoing care via synchronous DH technology to CSHCN and their families in a home setting.
Results: 38 articles were included in the review. Included studies generally reported interventions to be feasible and acceptable. Favourable outcomes were observed in both intervention studies aimed at replacing in-person visits with DH visits (n=10), and those aimed at training parents to deliver interventions via DH (n=7). End-users such as patients, families, and healthcare providers have not been routinely included in the design and implementation of synchronous DH interventions.
Conclusion: Few studies have systematically evaluated the use of synchronous DH interventions with CSHCN. A gap exists with regard to the inclusion of patients, families, and healthcare providers in the design and implementation of synchronous DH interventions.